Triple negative breast cancer affects my pink ribbon sistagirls in a major way. Susan G. Komen Foundation is holding a free webinar to discuss this particular strain of breast cancer and its impact on black women. The details are below. I hope that you choose to tune in and learn about it.
PS. I did not have triple negative breast cancer. But I do know several women who have struggled with this disease and it is very difficult to manage.
2/14/2011 - Triple Negative Breast Cancer in the African American Woman
3-4 p.m. CST / 4-5 p.m. EST
Please join us for a discussion on triple negative breast cancer in the African American woman. Over the last couple of years, triple negative breast cancer has received a lot of attention from the breast cancer community. In spite of this “buzz,” women who are diagnosed with this form of breast cancer are confused about what the diagnosis means and do not understand their treatment options or their risk. Our two speakers for the hour will be Dr. Olufunmilayo Olopade from the University of Chicago Medical Center and survivor and Komen advocate, Tina Lewis.
PARTICIPANTS MUST REGISTER TO JOIN THE WEBINAR BY CLICKING THE LINK BELOW. AFTER THE WEBINAR, YOU CAN CLICK THIS LINK TO HEAR THE RECORDING.
This event is being streamed. It is recommended that you listen via your computer speakers. If for any reason you are unable to stream, you can listen to the audio via the telephone by calling:
Telephone (ONLY if you cannot listen through your computer): ( 877 ) 633 - 6595
Conference ID: 38804979
NOTE: Please click the link below to easily test your internet connection prior to joining the meeting:
Connection Test: http://test.meeting-stream.com
I had a momentary crisis of faith this morning. I received a message that one of my pink-ribbon sisters found out that her breast cancer has returned for a third time. That news shook me deeply. After the fear subsided, the anger took over and once again I had to really stare into the mirror and adjust my faith.
Renewing my faith is a regular process. I lost my composure earlier today. Sometimes it is tough to remember that my blessing isn't another person's curse. They too have their blessings to be grateful for and thankful of.
I do not know what causes breast cancer. I do not know if something in our environment, our food supply, or something else is contributing to these high incidences of cancer. I do know that until a cure is found, I will continue to ring the alarm that we all need to do what we can to live our best lives to maintain our breast health.
Half of American Adults May Have Pre-Existing Conditions Putting Them At Risk For Rejection by Health Insurers
from Department of Health and Human Services
January 18 ,2011
Up to 129 million adults under age 65 have some medical condition which would put them at risk for being denied coverage by American health insurers, according to a U.S. government study. The conditions, ranging from cancer to chronic illnesses such as heart disease, diabetes, or asthma, would trigger rejection or much higher prices in the individual health insurance market.
New year, new me... new blog. :)
This year, I'd like to present my blog and the breast cancer journey in a new way. I am opening up my blog for guest posts from people who would like to speak about breast cancer (or fabulous boobies) and its affect on the world.
If you're interested... send me an email (send it directly to fabulous.boobies AT gmail.com) and let me know what you'd like to write about.
-250 words (can be a little more or a little less depending on the piece)
-answers the questions: how does/did breast cancer impact your life? what do you do to make sure that your boobies (or the boobies of people you love) stay fabulous?
-images will need to be approved before posting.
-all submissions can be cross-posted to your own blog
-all submissions will be subject to review/editing before posting
-you decide the tone -- can be funny, sad, reflective, etc. totally up to you.
That's it!! I'm excited to see what other people may want to share with the breast cancer community. Nearly a quarter of a million people are diagnosed with breast cancer every year. The impact on the world is major. I want to raise up a chorus of voices -- not just survivors either -- to discuss this disease and its effects on the entire world. I want to hear from mothers, fathers, children, friends, co-workers, health workers, employers, financial gurus, nutritionists, etc. ... anyone who has something to say.
The following article from Runner's World just brightened my day. I may not be ready for a marathon (yet), but its good to know that its possible. One step, then another step, then another step... until you reach the goal.
RW Challenger of the Week: Rob Wilkinson
Just a year and a half ago, radiation and chemotherapy treatments for tonsil cancer had left Rob Wilkinson so weak he could barely walk the stairs to his apartment. He even had to drive the 200 yards between his home and his office. “Any exertion would have required me to take an extensive nap,” he says.
Though he was never a runner before—for most of his life, he’d only run when he had to—after being declared cancer free in November 2009, Rob started running to rebuild his body from the ravages of chemotherapy and radiation. And somewhere along the way, he fell in love with it. He decided to spend his first year of being cancer-free by running the 2010 Richmond Marathon.
“I’m celebrating my life!” says Wilkinson. “Every run I do now is a celebration of my health, something I definitely took for granted before I was diagnosed and don’t intend on losing sight of again.”
He trained hard for the race, despite the lingering side effects from radiation and chemotherapy that he still experiences—dry mouth, tinnittus (ringing in the ears), and numbness in his feet.
At the Richmond Marathon he wore a shirt with the names of 30 people who had lost their battles with cancer, including his mother and four friends. His younger brother beat non-Hodgkin’s lymphoma in the ’90s.
“I knew my body was going to give me 26.2 miles of reasons not to finish the challenge, but those 30 names on my shirt helped me see this through to the finish," he says. "Cancer in all its forms is a horrible disease, and I hope I’m able to help raise awareness for all those that have to endure it and their loved ones."
Rob crossed the line in 5:06, despite battling a screaming hip and headwinds on the Lee Bridge.
"I didn’t think it was possible to hurt that much," he says, "yet feel so incredibly good.
Name: Rob Wilkinson
Hometown: Fredericksburg, Virginia
Family: Fiancé, Tracie; stepchildren Kyle 19, Ericka 17, Grace 7, Lucy 6, Abbie 6
Occupation: Safety Engineer supporting the United States Marine Corps
RW Challenge Goal: Finish the 2010 Richmond Marathon
What was the race like for you? The race itself was very much like the treatments I endured; I went in with a positive attitude and believed that I would make it through. Along the way it hurt and at times tried to bring me to my knees, but I kept pushing through all the pain. After I completed my last cancer treatment, the nurses walked me over to a victory bell and had me ring it; I felt the same emotions then as I did when I crossed the finish line at Richmond. For the previous eight months, I had thought about what it would feel like striding to the finish line. What I imagined didn’t even come close to the elation of seeing the finish line and then crossing over it. The flood of tears came as it finally sunk in that I had actually completed a marathon; the same person that had to be fed by a tube 18 months prior and couldn’t walk 100 yards without needing to stop and rest had just run 26.2 miles!
How has the experience of finishing a marathon changed you? It may sound like a cliché, but it has made me feel that I really can do anything that I set my mind to.
What is your next running goal? I recently wrote my running goals down for 2011 and most of them are time-based for different race distances. I do want to do another marathon, but I haven’t picked the race yet—perhaps in my old hometown of Philly with the Runner’s World Challenge again?
What is your favorite piece of gear? I love my Garmin 405CX! I was getting bored of running the same loop over and over again because I knew the distance. I love the freedom it provides to just head out and mentally flip a coin every time I come to an intersection. The only downside to it is that I have ended up on some roads that I had no business running on!
What is your idea of a rave run? I can’t count the amount of times I visited Disney World as a kid and an adult. I have to do Disney as a runner! I can’t think of anything better than running through the Magic Kingdom and Epcot!
What is the biggest challenge to getting out the door, and how do you get over it? My life has changed so much in the past year, both personally and professionally, that my free time is limited. I just have to occasionally force myself to come home, throw on the shoes and just go. Additionally, I’m lucky that my fiancé is a new runner and she has been helping to kick my butt in gear when my motivation has been waning.
What advice would you give to a first-timer? Figure out how to stay motivated and continually use it to keep running. My initial motivation was to build myself up from what the cancer treatments did to my body. Now I find my motivation in training for a specific race or distance, as well as trying to influence others to give running a try. I’m proud of the fact that I have personally motivated a friend to start running. Nonrunners just don’t understand how supportive we are to each other, the bulk of us are never going to be an elite and are really just competing against ourselves. I think they would be surprised to see how often we reach out to total strangers to give encouragement during a difficult section of a race or to congratulate a good effort.